About the Long-Term Care (LTC) Data Cooperative
The COVID-19 pandemic shined a spotlight on the data gap in long-term care. To address this need, the National Institute on Aging funded the Long-Term Care (LTC) Data Cooperative, a collaboration among providers and stakeholders in academia, government, and the private sector. The LTC Data Cooperative assembles resident data from the major long-term care electronic medical record (EMR) vendors.
These data serve four key purposes:
- healthcare operations/population health analytics
- public health surveillance
- observational, comparative effectiveness research
- clinical research studies
For approved research studies, electronic health record (EHR) data can be linked with Medicare claims and other data from the Centers for Medicare & Medicaid Services (CMS) via the NIA Data LINKAGE Program.
Mission
The mission of the Long-Term Care (LTC) Data Cooperative is to improve the quality of care within post-acute and long-term care facilities by compiling the most comprehensive data on post-acute and long-term care residents nationwide – and to translate these data into accessible and actionable information designed to help clinicians, managers and policy makers improve care.
Governance
This initiative is governed by the American Health Care Association
(AHCA). Together with Brown University, a pioneer of research studies
using integrated data on residents that have helped the long-term care
community, this effort will assemble the largest and most comprehensive
health records database from geographically and structurally diverse
post-acute and long-term care facilities and residents.