Academic Researchers

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Thank you for your interest in applying to the Long-Term Care (LTC) Data Cooperative.  

The LTC Data Cooperative is a novel data resource that makes nursing home skilled nursing facility (and soon, assisted living community) electronic health record (EHR) data linked with Medicare claims available for research, public health surveillance, and to support clinical operations in post-acute and long-term care facilities. This long-term care provider-led effort, funded by the National Institute on Aging (NIA), welcomes proposals for two types of research:

  • Observational comparative effectiveness studies, which compare outcomes for residents who were or were not exposed to a particular treatment (drug, test, or care regimen) or who were exposed to different treatments intended to address the same clinical condition, and
  • Clinical research studies that test and evaluate interventions in post-acute and long-term care facilities, such as pragmatic trials.

Please note that because of the unique nature of this initiative and these data, the application process involves review and input from LTC providers who participate in the LTC Data Cooperative. For approved research studies, electronic health record (EHR) data can be linked with Medicare claims and other data from the Centers for Medicare & Medicaid Services (CMS) at no cost via the NIA Data LINKAGE Program.

To subscribe to our Research Bulletin, which comes out approximately every other month, please email LTCDataCooperative@AHCA.org to make your request.

Eligibility to Use the LTC Data Cooperative Data

Who is eligible to apply to use these data?
  • U.S.-based investigators affiliated with U.S. institutions including governments, federal institutions, institutions of higher education, other non-profit organizations, and healthcare systems are eligible to apply to use the LTC Data Cooperative data.
  • Please note that researchers do not have to have funding to access the data. However, researchers funded by sources other than federally-funded awards or internal institutional funding should contact LTCDataCooperative@AHCA.org before applying.

Research applications are screened for eligibility and feasibility in step one of the application review process. Eligible research applications must:
  • Fall under one of the two approved categories of research (observational comparative effectiveness or clinical trials research); and
  • Describe how the study requires use of available EHR data from the LTC Data Cooperative, above and beyond data available from other existing sources.

Research Examples

The mission of the LTC Data Cooperative is to improve the quality of care within post-acute and long-term care facilities by compiling the most comprehensive data on post-acute and long-term care residents nationwide – and to translate these data into accessible and actionable information designed to help clinicians, managers and policy makers improve care.

We encourage applications that focus on generating findings that will influence care practices and policy.

See this page for a summary of some of the research proposals that have been approved to use the LTC Data Cooperative. 

Questions?
Find a list of frequently asked questions for Pre-approval, Post-approval and Data HERE.

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